I've actually held off on posting this, because I wonder if I don't divulge too much on this website sometimes.
As a rule, I prefer to write about things that I've personally experienced -- with the hope that it will help someone else in some small way.
My theory is: If I wondered about how something works or how something's done, then chances are someone else has wondered the same things.
That is what fuels my desire to keep writing these sometimes overly-personal stories... like today's.
After a friend of mine told me that she was experiencing something similar and did I have any tips, suggestions, little-known facts that she might need to know, that was all the motivation I needed to share my experience of having a laparoscopy to remove cysts from my ovaries, caused by endometriosis.
I have affectionately subtitled today's post:
Yep, today's post is a firsthand account of a medical procedure that I had recently.
And since I have absolutely no modesty (or would that be no common sense???) I've even included some very non-flattering photos of myself in the height of my pre- and post-surgery delirium.
So, hold onto your hat... here we go!
Got Endometriosis?
Ladies: Have you got endometriosis?... And/or cysts on your ovaries? If so, then there's probably a laparoscopy in your future.I'm here to tell you it's not that bad.
I had 2 ovarian cysts...
The one on the left ovary was initially measured at 4.67 cm; the one on the right ovary was 3.5cm -- that's larger than the ovaries themselves. After the surgery the doctor said that the cysts were actually much larger than the ultrasound had measured, and one (the "baseball") was even larger than my uterus! (My doctor found it hard to believe that I never had any worse symptoms because these cysts were so large.)
Forms of Treatment
Instead of a laparoscopy, I could have tried a couple more passive treatments (like hormone therapy which puts your body into full menopause temporarily, or one shot for 3 months to shrink up the cysts), but I chose the most aggressive form of treatment.Actually, I tried birth control pills for a month to see if they would shrink the cysts at all (as they typically do when it's endometriosis). But my cysts didn't shrink at all. Instead, both got significantly larger.
...Which meant they could be cancerous. The only way to know for sure was to remove them. So I did.
Here's what it's like to get a laparoscopy, or at least the way things went for me...
The Things They Tell You About (...with a few notes added by me)
After midnight the night before your surgery, you can't use tobacco products, breath mints, or gum. Nor should you take any of your "regular" medicines the day of surgery, unless instructed by your doctor.
You can't wear nail polish, hand lotion, hairspray, deodorant, or makeup on the day of your surgery. (Not exactly true, I told the nurse I'd forgotten that part & had all of the above on. She said it was okay.)
You have to arrive at the hospital an hour-and-a-half before your scheduled surgery time. (This was for the time it took to fill out simple paperwork ...get changed into your cap & gown and ...get prepped for surgery.)
You should wear really comfortable clothing to surgery. (I think everyone in for surgery that morning wore the same 2-piece jogging suit that I'd recently purchased at Kohl's!)
Be sure that you have your driver's license and your insurance card the day of your surgery.
They insert an IV into the top of your hand moments after you walk into the pre-surgery room. (Which, for me, was a good thing because it's the part I had feared the most... I don't like needles.)
They give you 2 or 3 pills to take soon after you arrive. Supposedly, these help prevent nausea after the anesthesia and lessen any anxiety prior to being rolled in for surgery.
Overall, my surgery took an hour and a half. I had an additional ablation (...it was an "option", so I went for it. Geesh... even at the gyno, they're trying to upsell ya!)
They access your pain after the surgery on a scale of 1 to 10 during your time in recovery. (Not true. In my case they said, 'How do you feel & what hurts most?' That alone determined 1 Percocet or 2.)
Once you can hold down food & drink, and urinate... you will be discharged from this outpatient surgery. (They actually never tested my ability to urinate.)
Your belly will be puffy for several days following the surgery due to the fact that they super-extend the stomach with a bunch of air in order to give them enough room to work. (This was very weird... thankfully, today's hip-hugger fashions helped to accommodate for the extra inch or so of space that my stomach now required. My belly actually got even more bloated as the days went on... probably due to the fact that I wasn't able to have a B.M. for 4 days.)
You will be able to go back to work after 24 hours. (Cough, cough, yea right! There was NO way I could stand fully erect, let alone get my mind off the pain & swelling -- for at least two days. But I actually needed 3 days off work due to the added swelling & pain in my belly -- see below.)
The carbon dioxide that remains in your body after the surgery may present itself as shoulder pain or a sharp pain underneath your diaphragm. (Very, very true! It's strange how the pain presents itself in these locations, so don't be surprised when you're wondering why places that weren't involved in the surgery start hurting.)
Your feet are in stirrups at least part of the time, which could result in some lower back pain after the surgery from all the poking and prodding. (I only felt a small amount of lower back pain.)
The pain medicine will mask your pain to help you feel better. Agreed, the Percocet (oxycodone) lessened the pain, but it still wasn't easy to forget about the uncomfortableness. In fact, I think it only lessened the pain due to the fact that Percocet was like a sleeping pill for me. I only took the pills for one full day after surgery -- every 4 hours, and after that the pain was completely tolerable. At that point, it was simply the act of twisting my stomach when getting up or turning around that moved the stitches themselves and hurt the most. On a scale of 1 to 10, the worst pain I ever felt (with pain meds or without) would rate as a 6. (They say to take 1-2 pills every 4-6 hrs. I took 1 every 4 hours.)
You will have a 1/2" incision at the lower part of your navel, with stitches that will dissolve. You will have 2 to 4 tiny (1/4") incisions near the pubic hair line. These incisions accommodate the instruments needed to perform the surgery. They may or may not have stitches under the bandages. (Mine did... and they took forever to fall out or disentigrate or whatever they do. For me, the healing time for those 3 prong marks took nearly 2 months to completely go away.
You can remove the waterproof bandages 46 hours after surgery. (I took one quick peek & decided to put them right back on. I didn't want to take any chances with those butterfly stitches & crusty spots. Not even a "regular" bandage would've worked, in my opinion -- especially not over the belly button itself, which was far worse than the prong wounds. So I just showered with them on for about 4 days longer than required.)
You can eat normally immediately after surgery. (Not that you'll actually want to, but it's A-ok to. I got home from surgery at 11AM and by 7PM I felt that my stomach could handle a few slices of frozen pizza & a fruit smoothie.
You can pretty much do whatever you're used to doing the day after surgery. I remember thinking it was odd that I was sitting cross-legged on my bed without any pain to speak of within hours of the surgery, yet 3 days later I was unable to stand upright without wincing in pain from my ribcage. In my case, this was due to a big glitch. (See B.M. below.)
The Things They Forget To Mention (...to me, anyway!)
The week prior to your surgery, you have to have bloodwork done (at the lab of the surgery center itself), and get an EKG if you're over 40 (at the "outpatient" are of the hospital adjoining the surgery center). That is, unless you've had these done within 2 months of your surgery date. The whole process took about an hour for me, though each procedure itself takes less than 5 minutes apiece.
The EKG is not as bad as it sounds... you're fully clothed, and they simply put some sticky tabs on your legs, your chest, your back, and your arms. You lie quietly for about 30 seconds & the machine measures your heartr ate & breathing patterns. It's not the same as an Echocardiogram -- I had one of these (specifically, a TTE) before.
You can't wear any of your own metal into surgery, but you can wear plenty of theirs... (Not only did one of my wrist bands that identified my blood type have a full metal clasp, but when I got home, I found a heart-monitor plug still attached to the back left side of my chest area -- it was one of those with a metal node.)
Before you change into your cap & gown, you have to pee in a cup, for a last-minute pregnancy test.
You have to wear these fairly tight knee-high socks that are cut-out at the toe part. They're to prevent blood clots in your legs. (Not sure why they're cut-out at the toe ...So they can play "this little piggy" when they're trying to get you to come around in recovery???)
On top of those socks, you have to put on their fun little socks with grippies on them -- so you don't slip if & when you walk on their uncarpeted floors. (I love these... I actually took mine home and wear them around the house... they're GREAT!)
Not sure why the "grippies" on the socks were required, because I didn't have to walk anywhere. They pushed me on a gurney from pre-op to the surgery room & vice versa. And I even got a free ride in a wheelchair out to the car. (I remember telling the recovery nurse how good it felt for a Type A personality who's always in control of things to spend the past couple of hours completely being taken care of for a change.)
You have to be intubated. This terrified me the moment I heard the nurse slip-up & tell me this in pre-op. But it's really not so bad BECAUSE you're asleep when they do it. Once I knew I'd be asleep, I was fine. (But it certainly didn't help that the night before I'd watched an episode of Dr. 90210 where they couldn't get the trach tube down the guy's throat -- but for some reason, he was awake throughout the process.)
They "catheterize" you. But, just like the trach tube... you're completely asleep & won't remember a thing about it. (Good news: There's no lasting evidence, nor any pain at all after you've had a catheter removed.)
They tape your eyes shut during surgery. How I found this out: The morning after, my left eyelid kept sticking to itself. This was also the point at which I discovered tape residue underneath both eyes, as well.
For outpatient surgeries (at least at the hospital I went to), the surgery room itself is more or less just a big open cafeteria-like room filled with people on gurnies -- separated by individual curtains. I remember being surprised that it didn't look more sterile and private. But then again, we were all there for some pretty routine stuff in the outpatient surgery center.
As soon as you come to and can carry on a conversation with the Recovery Nurse, you're given a Percocet. They have to wait 10 minutes to see how your body reacts, then they give you a Saltine cracker and your choice of beverage -- to make sure you can hold down food before you leave. (When I told her I was still feeling the pain pretty good at the bellybutton region, she gave me another Percocet and we waited another 10 minutes. As a result, I was feeling perfectly fine & painless for the rest of the day. In fact, Jim was amazed I was able to dress myself & even bend down and tie my own shoes. I guess I was kind of in la-la-land.)
You may become constipated afterwards, which could wreak havoc on your healing process; so be sure to start with some stool softeners after the first day at home. I didn't start this until the 3rd day after surgery, which meant I endured too many days of sharp poking pains anytime I'd breathe in. (Something about my innards poking my ribs or lungs or something. End result: much, much pain.)
At one point, the pain was so severe, I wondered if I was having an appendicitis attack or something. I couldn't move without making the pain worse. That's when I called my doctor & was told that I needed to have my first B.M. immediately! She recommended Colace stool softener & if the pain continued to go to the emergency room. That day, nothing changed. The next morning, I was about to head to the emergency room, when I decided to try eating some oatmeal first instead. Fortunately, that was enough to trigger the goodness. From that point forward, the sharp pains began to subside and I began to be able to stand up straight for the very first time in days. (Tip: Don't purchase a stool softener that has a laxative in it... If Colace is not available, Dulcolax will work just the same.)
I've read that you can resume sexual activity after 2-3 days (which, quite honestly, I couldn't imagine being very enjoyable), but my doctor said to wait 2 weeks. (This might have had something to do with the size of my cysts -- baseball-sized on one ovary; golf ball size on the other.)
Your throat will be a tad sore for 2-3 days afterwards from the trach tube.It's not unbearable, just noticeable. And your voice sounds slightly higher pitched for a couple days too.
If you have crowns on any of your front teeth, they need to know about it. (I had to sign a release acknowledging that there could be "dental damage" from the intubation process itself... they said it could occur if you have crowns in front.)
Afterwards, you may have cuts on your lip that swell up whenever you eat hot soup other warm foods & beverages. (I presume this is from the intubation process and/or one of the crowns I had on a front tooth.) A spot on my top lip swelled up for over a week after the surgery -- only whenever I ate something hot or cold.
When you're feeling those pains in your shoulders, neck, back, and chest from the excess air, it helps to get up and move around. It's also a good idea to drink either hot water or hot tea with fresh lemon. A heating pad will help too.
The intense pains felt after surgery can jump from one side to the other, with no rhyme or reason. For instance, the cyst on my left side was the largest, yet that was the side that hurt the least overall. The right side would often hurt so badly I'd double-over to get through the pain. Only to find, that an hour or so later, a similarly intense pain was occurring on the left side this time.
You will return to your doctor's office for a post-op checkup in about 2 weeks after surgery. At that appointment, your doctor will discuss the results of your surgery and answer any further questions you may have.
You'll probably lose some weight. According to my doctor, I lost 15 pounds! (That's partially due to the removal of a baseball and a golf ball...)
How I Learned I Had Endometriosis
I wasn't really having any symptoms at the time I was diagnosed with endometriosis.I simply went to the gynecologist one day after a 2-3 year span of not having been to one. When we talked about how I hadn't been able to get pregnant the past 6 years... and about my heavy periods... and about ONE night several months ago that unexplainedly left me doubled over in pain and ready to call an ambulance... she thought we should do a trans-vaginal ultrasound -- just for the heck of it, more as a precaution than anything else.
When the ultrasound revealed a cyst on both the left and right ovary, my first thought was to just "live with it".
Why? Because I knew that cysts on ovaries are actually quite common. And they are usually pure 'ol endometriosis -- a sometimes painful, yet common condition that you can live with.
What scared me most were the stories I'd heard... how even if you remove the endometriosis, it's practically a given that the endometriosis will reappear again and again in the future.
And since my symptoms weren't really that bad -- in my mind -- I feared that I'd actually be triggering more symptoms and more pain and more endometriosis.
In the end, Jim and I chose the most aggressive form of treatment in order to get to the root of the problem... fast.
While the cysts were larger than everyone thought, they were not cancerous. (...thank goodness)
And the bonus from my treatment: No more periods!
Truthfully, I wasn't going to do "", but when the doctor said she would actually like to have this option herself... and Jim thought I would probably be happier if I did it... I realized that it was probably a good idea. Now I can say I'm very glad I did it.
Endometriosis No More?
For the record, this laparoscopy or surgery to remove the cysts isn't really a cure; it's just a temporary fix because endometriosis tends to show itself again. The good part is you can do things to keep it from reoccurring so aggressively (like take birth control pills, I am), or treat differently when it reoccurs. (For example, now that I know any future bouts of it probably won't be cancerous, I could treat reoccurrences with those shots I talked about earlier.)Another fun fact: By its very nature I guess endometriosis sort of invades your body and latches onto your linings all throughout your body. For example, they think endometriosis could be the explanation for some weird chest pains I've had for years. Doesn't make sense to me, but that's what my other doctor told me.
So... once you have endometriosis, you always have endometriosis. But you can totally live with it. It's not life-threatening in any way (unless yours is cancerous). The only difference is the degree of pain that different people have from it. I had next to none.
For More Information...
Photos of the laprascopic procedure & tools used (Warning: only for those with strong stomachs.)
Endometriosis Multimedia Gallery - photos and videos showing endometriosis at its finest.
Endometriosis FAQ - answers to all of your pressing questions.
And now for the humor...
About a week after my surgery, Bob & Tom talked about this exact thing! Actually, they were talking more about the Ultrasound that's required to initially identify things like cysts... and endometriosis... and even a tilted uterus. (Yep, I happen to have one of them, too.)Audio clip from the Nov. 15, 2006 Bob & Tom Show where they talked about Christy's tilted uterus.
Audio clip from the Nov. 16, 2006 Bob & Tom Show where they played the song "Tilted Uterus" by Duke Tomatoe.
See... if you look hard enough, you can find humor in just about anything!
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When I learned that I would need to have an immediate laparoscopy to remove an ovarian tumor I went into a slightly controlled panic. Having no one in my life who has gone through such a proceedure has left me with no idea of what to expect (a rather terrifying predicament!) Thank you for your post... it is the only article I have found that answers REAL questions from a patient's standpoint. You have lowered my anxiety levels enormously!! - I can handle this now.
Hey Thanks for putting this blog up. I just found out today that I have a very large cyst in my right Overy. I think she said it is 16 cm in diameter... :S anyways my Dr. is going to get me in the Op room As soon as she can to remove it and my Overy...but I'll still have my left one. I'm 21 So when I heard all that... I was totally freaked out. I got home and googled and I came accross your post. thanks. Hopefully I can find out soon if it's cancerous or Binane.
I am having laproscopy for my ovarian cysts on the 22nd of July. I too have a large 8 cm cyst on one ovary and a golf ball sized one on the other. Plus additional cysts - we lost count. My doctor is pretty sure my problem is endometriosis and I can't wait to get rid of all this junk. I just canceled a complete hysterectomy with one doctor and got a second opinion. Glad I did, what a difference in the procedures! I have had chronic pain for the past 3 mos. because of these cysts. Thought I was having bladder or kidney infections and IBS. Hope my procedure is as successful as yours was. Thanks for helping me prepare - I will know what they are talking about at my pre-op appointment tomorrow!
hi lynn,
thanks for this post. i'm going in for surgery next week and was a lil' worried. it gives me strength to know it's not that bad :)
Yay! I'm so glad to hear that all went well.
Thanks for the update!
Hi Lynette-
I am 6 days post op and I am feeling great...Your blog was right on!!! Thank you!!! :-) They ended up finding the Cysts were in fact endomitriomas (Chocolate cysts) I have stage 4 Endometriosis and my right tube is completely blocked. Also the Rt tube, Ovary and Uterus were all attached. So they removed the cysts, most of the endometriosis and re-contructed the rt ovary. The Dr. said that I will still have cronic pain but it should not be as severe as it was. The fertilitst says that I can start treatment after my post op. Best regards, Victoria
I have had some pain in my pelvis...I had a appointment at hospital yesterday and the reg thinks it might be endmetriosis and i need a laparoscopy to confirm/treat...the thing id i dont really want it done...My pain is not constant and only when someone pushes a place rigt up inside either through sexual intercorse or examination i dont have constant pain...so i was thinking to just leaving it for now??? What do you think???